July 30, 2010

Sometimes, your heart just gets tugged at....

My little grandson Cameron is five now...has been for a month. He was only two years old (24 months, in baby language) when he was diagnosed with juvenile (Type I) diabetes. But of course you know that by now because it's been the subject of many of my posts.

Getting his blood glucose checked (finger pricks) and getting shots of insulin are just a part of his life and really, he was so young when he was diagnosed, he's doesn't remember not being diabetic.

If you've followed me for a while you know that one of the hardest things I've ever done in my life was the first shot of insulin I had to give him.

Looking back on it all, and after giving him hundreds and hundreds of shots, I wonder that I was so nervous and skittish about plunging that syringe into his little butt. I do it now without even thinking about it.

Cameron absolutely never reacts at all to either the finger prick or the shot. As a matter of fact, he's recently insisted that I let him do the finger prick himself. We do it with a very simple "gun" type thing and of course he's into guns and things that go bang, so I let him. All I need is that one little drop of blood so it doesn't matter which one of us makes it appear, and it seems to make him feel good when I let him know I think he's a big enough boy that he can do it himself.

Lord knows, it won't be long before he'll be testing and injecting himself all on his own.

Cameron is very much a five year old little boy. Adorable, full of energy and imagination. How I love to watch him when he goes off into his imaginary play world.

So yesterday morning I was totally unprepared for what happened.

He has to have his blood glucose checked before every meal. We have to know his levels before he eats, and then make an educated guess, based on what he eats, as to how much insulin to give him. It's just a normal routine any more but it means he gets pricked before breakfast, before morning snack, before lunch, before afternoon snack, before dinner and before bedtime. And depending on the day, maybe even more times than that.

So yesterday morning, I did what I do every single morning that he's with me. I pricked his little finger and then I gave him a shot of three units of insulin.

And he surprised me by reacting. He never does. But this time, he looked up at me with huge, huge tears in his eyes and he said,

"Nana. I don't want to be diabetes any more."

That's exactly what my five year old little grandson said.

And I tell you, it broke my heart into a million pieces because of course he will always be "diabetes."

I tell you, sometimes things just fly out of nowhere and break your heart. I know for sure that Cameron could have something a lot worse than diabetes, and that we are blessed when you look at it that way, but oh my word, I hate it more than I can say that he is diabetic and that it's forever and that at only five years old, he seems to be realizing that.

I'm a pretty strong woman. But yesterday morning, a very simple and honest statement from my precious little grandson just about broke my heart.

23 comments:

Becky said...

That tugs my heart too, and I don't even know Cameron except through you. I don't want anyone to be diabetes anymore. It stinks.

Michelle said...

AWWW Barb....that is so heartbreaking..The Poor love {{{{{hugs}}}} to all of you..

Dawn said...

It is a terrible thing, and that is a heart tugger for sure! I wish they could find a cure, not just a good treatment. Bless his heart.

Kelli said...

This completely breaks my heart. I started my kidney journey at 2, and can remember when it all became clear to me that I would always "be kidney", to use Cameron's words.

Now, I hear my children explaining their anger with words like "You should be our mom, but you aren't" or "You should be or mom, but you 'can't'" - all because I "am kidney".

I will promise you, Rob, Krissy and Cameron that I will pray very, very hard for Cameron as he begins a new journey. A journey through diabetes with this new level of understanding.

I will pray that he begins to understand that acceptance is not giving up or giving in.

That he will learn, even at this tender and young age, to embrace all he can do with zest and zeal even though it will always include shots and finger pricks.

I love you, Barb- you are a beloved friend And that means that I embrace those that you love in prayer. Like they, too, are beloved friends.

I look forward to hearing better things in time from Cameron :)

He loves you Nana. Hold that close :)

Pam said...

Barb~

I know diabetes isn't the hardest thing you could have to deal with, but it is your journey as Cameron's nana, and it will continually be Cameron's life as he knows it.

May the Lord give you the grace and comfort for each day, and may the strides being made today in the area of diabetes research make a difference for Cameron's future.

Praying for all of you, dear Barb.

Barbara H. said...

That is definitely heart-tugging. I'm sure it won't be the last time he feels that way, but thankfully most days it will probably just feel "routine." I sure wish they could find a cure.

My heart goes out to both of you.

Susanne said...

Nobody should have to be "diabetes" anymore. That made my heart sad too, Barb. Praying for little Cameron.

Heidi said...

aaahhh.. got a little teary there. It would be hard for everyone. And as mothers and grandmothers.. all we want to do is make it better.

Prayers for little Cameron.

Sheri said...

Aww Barb, that had to tear you apart.

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Stephanie D. said...

Bless his little heart--and yours, too. How do you comfort a little one like that? So much to deal with and so mature beyond his years, but still just a little boy. Prayers for all of you.

ChupieandJ'smama said...

HUGS Barb. It's the age. My little guy is 6 and he's really been struggling lately with the fact that he has food allergies. It comes and goes but when we do something like go out to eat and he can't order what he wants he gets sad or upset and says "I hate my food allergies. I can't do anything because of my food allergies". It's really tough. I did a post on WEGO Health about some suggestions to help kids with food allergies deal psychologically with them, maybe there's a few things you could pull out and use with diabetes. You can find the post here: http://community.wegohealth.com/profiles/blogs/the-psychological-effects-of
Hang in there. He's one loved little boy and that will help get him through.

Barb said...

You are all so sweet - the comments you've left here have moved me more than I can say. Kelli, I love you too. xoxo

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Beck said...

Poor Cameron. We've had a similar issue here recently when The Baby realized that there was no getting away from her food issues - it must be something about being 5, eh?
He's surrounded by a big loving family, though, and all of you will support him through this.

Sue said...

Oh Barb, after reading this I just called on our powerful God to offer Cameron peace with his diabetes and to give you strength at times like this. What else could I do?

elizabeth said...

Barb I know we'd do anything in the world to take on something for our grandkids. I can't imagine hearing those words. I agree with somebody else - nobody should have to be diabetes and it's heartbreaking at his age.

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La Dolce Vita with LeAnn said...

Just found your blog and wow can I relate to this post. My daughter became a diabetic at the age of 7 and it broke my heart just as yours is broken with your sweet grandson.

We have lived the journey of diabetes for 25 years and the words..."There will be a cure" still haunt me.

Hugs and blessings be with you and your family. I too ama pretty strong woman, and yes we could have something much worse than diabetes, but every time I hear my daughter to this day say... I don't want to be diabetic the pain stabs my heart.

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Barbara said...

Bless you, Barb! I would have cried, too, if one of mine had said something like that. Kids just pull at your heart strings! And he is so young to realize that he'll always have this troublesome disease. Bless his little heart!

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